27F, I'm at the point where I want to remove my own leg

General Health Q&A
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Second Update
It has been a stressful week, but I’ve finally received some actual results. Following a blood panel and a consultation, I’ve been diagnosed with Arthritis. My ANA levels came back high, so they’re re-testing those. I’m currently on the waiting list for Rheumatology after submitting my paperwork. Additionally, a head scan ordered by my psychiatrist showed a Chiari malformation. I’m still processing that news, but I’m receiving support. In the meantime, I’ve started home physiotherapy sessions with a wonderful specialist.

I want to thank everyone who offered guidance and validated my experience. It’s difficult to advocate for yourself when you’re being ignored, and it makes you doubt your own sanity. Getting these answers has made me feel much more grounded.

UPDATE After seeing your replies, I let my husband drive me to the ER before lunch. It took some convincing, but we went. When the doctor asked what was wrong, I just broke down and explained everything at once.

  1. The ER doctor was shocked that I’d been left to suffer this long. He was incredibly empathetic and confirmed that this level of agony isn’t normal, regardless of my other health issues. He was truly wonderful.
  2. They provided stronger pain medication, which allowed me to get four hours of sleep. I felt slightly improved upon waking. The doctor mentioned the waitlists are long, but he personally filed the paperwork for a scan tomorrow or the day after. He advised me to keep all weight off my ankle.
  3. Several staff members and students examined me and asked about managing chronic pain. They confirmed there is a physical issue with the joint. The doctor was surprised by the audible cracking every time I moved it. While he couldn’t give a definitive diagnosis without the scan, he suspects my hypermobility caused a structural shift or tendon damage from my previous falls.

The visit went well overall. They considered admitting me, but I told them my husband could just drive me back for the scan. The nurses have been so kind, bringing me snacks and extra bedding, and a student did a great job taping my ankle—it finally stopped clicking.

So, there is definitely a physical problem. My usual doctor was clearly wrong. It’s heartening to see there are still dedicated medical professionals and students out there.

I’ll try to update again once I have the scan results. For now, my husband is getting me a treat and I’m feeling hopeful.

This will be my final post here due to the harassment I’ve received in my inbox. To those who were supportive and offered real advice, thank you. I’ll be working with my support worker to navigate the referral process.

Hello everyone. I’ve seen a doctor who claimed my symptoms were normal, but my husband and I are certain they aren’t. My left ankle has been failing for a year. I can’t balance, it rolls constantly, and it makes a cracking sound with every single movement. The pain keeps me up at night and doesn’t respond to medication. Braces, stretches, and gels haven’t helped at all. I have a very high tolerance for pain—I’ve had a natural birth and a ruptured cyst without realizing it—so for me to say this hurts is significant. It feels like the joint needs to be forcefully stretched out. I’m tired of my GP blaming this on anxiety. (164cm, 69kg).

19 Likes
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Besides your primary physician, have you consulted any specialists? I’d suggest looking for a surgical podiatrist who deals with ankles. You might also try an orthopedic surgeon or a doctor specializing in physical medicine and rehab.

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I’m not sure if this is an option in the UK, but in the US, I’d recommend seeing a DO (osteopathic doctor) for manual therapy. They are often better at diagnosing subtle mechanical issues that standard MDs miss. I’m a big fan of their approach for my own issues.

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How much time have you spent in physical therapy so far?

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In Canada, if your GP is dismissive, you can try a walk-in clinic or a telehealth service for a referral. If all else fails, go to the ER. Even if it’s not a traditional ‘emergency,’ the level of distress you’re in makes it one. Be prepared for a long wait—bring your charger and some snacks—but stay until you get a second opinion.

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Have they done an MRI yet?

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I’ve caught up on your comments. It sounds like you have a complex history and are currently unable to switch GPs for a few weeks due to legal reasons. You’re looking for a diagnosis and pain relief. Take a deep breath; chronic pain is incredibly draining. Since you’re stuck for a few weeks, wait until you can get a new GP, then go in with a clear list of symptoms and the specific referrals you need. Bring an advocate with you. In the meantime, rest and use ice. Things should start to improve once you have a better doctor.