I’m curious if others have seen their neuropathy migrate to different areas. I have lived with polyneuropathy in my feet and legs for five years, but recently the pain has moved into my hands and arms. A Nerve Conduction Study just confirmed neuropathy in my elbows and upper limbs, along with carpal tunnel in my wrist. Now my neurologist wants to test my neck and back as well. Has anyone else dealt with this kind of progression? This is getting really difficult.
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I have been dealing with neuropathy for over 30 years. In my case, it actually started at the top of my body and moved downwards as the years went by.
Yes, sadly it did. It started in my feet, progressed to my knees, and then eventually involved my hands and arms too.
Yes, unfortunately. At this point, I feel it everywhere.
I actually had a bad fall recently because of the neuropathy in my feet and ended up with broken ribs! Do be careful out there.
That happened to me as well, though the symptoms actually showed up in my arms and hands first.
I’ve had it in my feet for 22 years now, but it is just recently starting to affect my hands.
Yes, I’ve had it for nearly 20 years. It is everywhere now and impacts my swallowing, breathing, digestion, and mobility. I really hope you find some relief.
Mine began in January and I just got SFN confirmation this week. It started in my legs, moved to my arms, and now it’s my whole body with constant zaps. I feel like my bones are made of glass and my feet are like blocks of ice. I’m totally exhausted. All my scans and labs come back normal, so there’s no known cause. If it’s spreading this fast already, I’m scared of what the next few months will bring.
I’ve had it in my hands and legs since finishing chemo back in 2010. A few months ago I started getting sick almost every day. Tests with a specialist showed I have gastroparesis, meaning my stomach doesn’t digest food properly. She suspects it’s the neuropathy spreading, though it could be from a brief stint on Ozempic. The meds for it have scary permanent side effects, so I’m just trying to manage with anti-nausea medicine that rarely works.
Mine is autoimmune-related, so it’s non-length dependent and continues to spread.
I’m a doctor and wanted to share some thoughts. When neuropathy moves beyond the lower extremities and becomes more systemic, it’s vital to look for causes other than diabetes. One possibility for polyneuropathy like yours is POEMS syndrome. It’s a rare disorder that is often misdiagnosed as CIDP. If you have other symptoms like skin changes, fatigue, or hormonal issues, please discuss this with a hematologist or your neurologist. Getting an early diagnosis is key since there are treatment options like steroids or even transplants. Keep fighting for answers.