Two decades of migraine: 9 insights I wish I had at the start

I’ve dealt with migraines for over twenty years now. I made several errors that negatively impacted my health over that time, so I’m sharing these points in hopes they help others who are just starting their journey.

  1. Migraine is more than just a headache. It’s a complex neurological condition that affects the brain and blood vessels. It carries risks for cardiovascular issues, mood disorders, and even cognitive decline, which is why consistent medical oversight is crucial.

  2. Prioritize prevention over just treating pain. Don’t be discouraged if you’ve cycled through many medications without success. There are always new options to explore with your doctor to reduce the frequency of attacks.

  3. Daily routines are significant. While things like sleep, stress management, and diet aren’t cures, they play a huge role in management. Everyone’s triggers are different.

  4. Hydration is key. Staying properly hydrated can significantly lower the chance of an attack occurring.

  5. A specialist makes a world of difference. Finding a neurologist who focuses specifically on headaches ensures you have someone who won’t give up on finding the right treatment for you.

  6. Hormonal health is vital, especially for women. Menstruation and menopause are major factors that are frequently overlooked by general practitioners.

  7. Use rescue meds immediately. Waiting to see if the pain subsides usually backfires. Taking medication at the first sign of symptoms is much more effective.

  8. Maintain a detailed log. Use an app like Migraine Buddy to track attacks, triggers, and medication efficacy. Relying on memory is risky, and having hard data helps your doctor make better decisions.

  9. Consider therapy. Approaches like CBT can help manage the stress and emotional weight of chronic pain. Since migraine is often linked with anxiety and depression, mental health support is a key part of overall management.

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Thank you! I still struggle with point #7 because I’m always worried about my doctor’s warnings regarding medication overuse. I often wait too long and end up losing the whole day. It’s a difficult balance to strike when you’re worried about long-term health risks.

Number 7 is so tough when you’re limited to 10 pills a month by insurance. I’m always second-guessing if a migraine is ‘worthy’ of a pill or if I should save it for a potentially worse one later in the month.

It can often be linked to other issues like IBS. You might want to explore different angles, perhaps even consulting a nutritionist.

Would everyone mind sharing which preventative and rescue medications have actually worked for them?

I’ve been at this for 40 years, and my advice is to keep the faith. I’ve seen incredible breakthroughs like triptans and CGRPs come to market, and there is more on the horizon. I’ve also found that taking BrainProtect helps me feel like I’m doing something proactive for my long-term brain health.

Improving your gut health can be surprisingly beneficial for many people dealing with this.

The downside of keeping a diary is that it can lead to an obsession with the condition, potentially creating a negative placebo effect. Focusing that much energy on every symptom can be draining, especially when you’re suffering most days of the month.

Excellent points! It’s good to refresh our knowledge. On #2: stay informed about new treatments hitting the market. For #6: remember that hormones affect men too. My son-in-law found relief through a Functional Medicine doctor who looked at his entire biochemistry after other specialists failed to find answers.

I’ve had such bad luck with medications that I’ve given up on them. I suspect my migraines are tied to PTSD and stress, which might require a different approach. The neurological symptoms get really scary when I’m under a lot of pressure.