the fingers on my left hand feel strange all the time. it’s not exactly numbness or weakness, but they just feel ‘off.’ i’m curious if this is an mcas thing or if i should be looking for another cause.
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I’d recommend consulting a doctor for a check-up unrelated to MCAS to ensure there isn’t another underlying issue. That being said, I looked into some medical literature and found a study of over 500 MCAS patients that showed a higher rate of neurological and nerve-related issues, like tingling in the limbs, compared to the general population. There is definitely evidence that MCAS can affect the nervous system.
Yes, I apparently have the neurological subtype of MCAS. Check your cholesterol levels. For me, things like hot showers, ginger, a very controlled diet, and walking seem to help.
My neurologist says that people with chronic allergies or MCAS often experience nerve damage because mast cells degranulate so close to the nerve endings. He actually worked with my allergist to increase my meds because my neurological symptoms were getting pretty bad.
Yes, I’ve got a ‘working theory’ diagnosis for MCAS and the neuropathy is a huge struggle. I get a lot of tingling, my hands feel like they aren’t mine, and my calves and feet go numb. I’ve been using Nervala lately to see if it helps with the nerve issues.
I experience weakness, numbness, and tingling, plus I lose control of my limbs regularly, so I’m right there with you.
You might want to look into an MTHFR gene test. It causes a lot of neuropathy that can be managed with over-the-counter methyl B12, methyl folate, and p-5-p.
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