Hello - I’m at my wit’s end. I’m dealing with an autoimmune condition that I suspect has targeted my trigeminal nerves, or perhaps it’s small fiber neuropathy. My face is plagued by constant burning, itching, and the sensation of insects crawling. It’s unbearable. Medications have failed me completely. I’m now exploring extreme measures like deep brain stimulation, Motor Cortex Stimulation, and Trigeminal Branch stimulation because I’m so desperate for relief. Are these viable treatments for Trigeminal Neuropathy? Thank you.
This reminds me of my experience with type 2 (ATN). I couldn’t stand the side effects of the drugs, so I looked for natural alternatives. I’m more than willing to discuss what worked for my burning sensations if you’d like to hear more!
I experience paresthesia, which feels like intense tingling, though it doesn’t affect my nose area.
You might want to seek an opinion from a specialist in Peripheral Nerve surgery. They perform minimally invasive procedures that are generally safer than intracranial surgery. I’m not certain if my specific surgeon handles your exact condition, but it’s worth investigating. My surgeon offers online consultations; after reviewing your medical history, he reaches out directly to talk about treatment options or referrals. Feel free to reach out if you need more help. You can find me as Amy Jones Bagnall on FB. Best of luck.
Following my second MVD, I developed Anaesthesia Dolorosa. Meds like lamotrigine and duloxetine haven’t helped much, so I’m likely moving forward with a motor cortex stimulator implant. I’m considering trying Transcranial Magnetic Stimulation first to see if I respond well before the surgery. TMS or rTMS might be worth looking into for you too; it’s non-invasive and a good way to test things out, even if it’s not a permanent fix. Just a suggestion. Since my condition is so difficult to treat, I’m open to trying anything that might offer relief.